Trials

I've been contacting different hospitals about the NP-001 trials. The Portland location said they have 2 openings and a long waiting list amongst their current patients. There's another site, in Centralia, which is closer, and the nurse called me today. Mom is on her list of possible subjects. There's a bit of a process, but we're moving forward. We've got to sign paperwork and get her down for a physical and testing. Then it'd be 5 weekly infusions followed by monthly infusions after that. I have every finger and every toe crossed that we can get into this trial.

In even happier news... we met our initial $2000 goal on Operation Kay! I've decided to increase the goal to $3000. Everyone has been so generous that I figured continuing the fund raiser couldn't hurt.

Thank you to anyone who is reading this, reposting the link or donating. I will be making a trip to Joann in the next couple days to get the supplies to paint rewards for donors. Anyone who hasn't sent me their address please do so I can thank you properly. email valoreekaye0@yahoo.com

Definitive

Yesterday we got the definite ALS diagnosis. Today mom told her mother and her sisters. It was a tough day all around.
I've decided to scrap the China idea for more concrete treatments. There are some clinical drug trails that are recruiting in our area so I'm focusing our fund raising efforts on getting money to help with travel expenses, co-pays and general medical costs.
Hoping to raise a more modest and attainable $2000 to start off. If we end up going to Portland every other week for 6 or more months then I'll eventually have to open another fund raiser, but I'll worry about that later.
Thanks to anyone who is reading and to anyone who is willing to help. I still plan to paint special post cards for anyone who gives to our cause.