Yesterday we got the definite ALS diagnosis. Today mom told her mother and her sisters. It was a tough day all around.
I've decided to scrap the China idea for more concrete treatments. There are some clinical drug trails that are recruiting in our area so I'm focusing our fund raising efforts on getting money to help with travel expenses, co-pays and general medical costs.
Hoping to raise a more modest and attainable $2000 to start off. If we end up going to Portland every other week for 6 or more months then I'll eventually have to open another fund raiser, but I'll worry about that later.
Thanks to anyone who is reading and to anyone who is willing to help. I still plan to paint special post cards for anyone who gives to our cause.
My mother, Kay, was recently diagnosed with ALS, a terminal neuro-muscular disease. There is hope... clinical trials for a number of drugs are on the horizon and these drugs are showing real promise in the fight against ALS. I am trying to raise money to cover travel expenses, co-pays and various other medical costs so my mom can worry about getting well, not about the price of her care.
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